Sunday, December 14, 2008

Ryker's Angel Day

I would like to make a few disclaimers: this post is unusually long, and full of pictures. Some of these pictures are of Ryker, after he had passed away. Remember, it is extremely difficult to share these, but they need to be shared. This is a hard day, but the knowledge of the gospel lifts us.

I wish I could say that it does not hurt. I wish I can say there were not a lot of tears. But part of mourning is letting our hurt show, mourning together. I wanted to share how this day came to be. So I will start at the very beginning.

Saturday, December 15, 2007, was a day Mike and I and our family looked forward for a long time. Ryker had been intubated for seven weeks, and we were so excited to finally experience the joys of having him extubated. The whole week prior, they had been trialing and exercising him in preparation for the day. They were planning to extubate him the night before, but it was my first night back to work, and so I asked if they could wait for Mike and I to both be there. (I am so glad that I am a pushy Mom because I could not imagine if we had not been there, I shutter to consider the possibility) Saturday morning, I came home from work, slept for a few hours and we headed up to Primary's. Mike, his Mom, and I stood there with tears of joy, as they removed Ryker's breathing tube. That first little cry brought tears to all, even the doctors. It was amazing!



After about 30 minutes, we were both starving and went down to get some food. We hurried through, and on our way back to his room, stopped to say hi to a couple of heart families and share our amazing news. One of our favorite nurses Ken let us know that he thought they were reintubating Ryker. We headed into his room, and sure enough, they were. It was hard, because he had only been extubated for about 45 minutes. But we knew this was a very real possibility.  Even after they quickly intubated, we watched as his oxygen levels dropped from the 60's, to the 50's,  the 40's, the 30's, and down to the teens and 20's. I remember yelling out "NO!", when I saw them wheel the blue crash cart, just thinking this could not be happening.  We called our families, and I recall begging and pleading for them to please hurry up there, that something was desperately wrong. Shauntelle, another heart Mom, came and brought us soft tissues and just hugged us. A short while later, our families started arriving, and that's when the the cardiothorasic surgeon and cardiologist came to talk with us. Dr. Hawkins and Dr. Yetman were honest and kind with us, telling us that the only option we had at that point was to surgically place Ryker onto the ECMO machine. Dr. Hawkins let us know that he did not feel like it was the best option. Ryker's o2 were at 19 then, and had been for about 40 min. We just felt so overwhelmingly knew that it was time to say goodbye, and without more then a simple nod to one another, Mike and I told them it was time. Heavenly Father was calling our sweet, sweet baby boy home.



We went into his room, and took some pictures, and I began removing IV's, lines, and leads, as they were no longer needed. The veil was so thin, and the peace there was tremendous. Mike, my Dad, his Dad, and one or two brother-in-laws gave him a name and blessing, while the nursing team pushed in a huge couch, so that Mike and I could hold our sweet baby for one last time.



They put Ryker in our arms and we held him, enjoying our last earthly moments we had with sweet Ryker. They removed the breathing tube and Ryker quickly passed from this world. It just broke our hearts. Our family then took turns holding Ryker's little body, as none of them had had the chance previously, since he had been so sick.




My dear sister-from-other-misters were there to support us. Abby was pregnant with her little first at the time, and Courtney worked in the PICU that Ryker lived his short seven weeks in.



One of my favorite things that I have from my baby's passing is the beautiful hand and foot molds they did for us. This is a picture of us when they were doing Ryker's hand molds.



I love this picture. I love the bond these two brothers and best friends share. Jason was always kind of an extra part to Mike. He was an extension and he has been there for Mike on some dark, hard days. I can only imagine that because Mike and Jason are so close and share so much, that Jason understands better than most the pain and heartache.



My sister Megan. I do not need to convey the love she has for Ryker. The picture is worth a million words, words that would never describe the love.



One of my favorite pictures is Mike holding Ryker. I am sorry to other Dads, I am a bit biased, but I have yet to meet a man who adores his children more. The reason why I love this picture is the overwhelming peace that is shown in Mike's face, and as I write this, I feel that peace again.





I am grateful for the knowledge I have of being sealed to Ryker and Lilly. We mourn the loss of our angel, and know that he will comfort us through this hard time. I look forward to the day I will see my babies again, and hold them to me. We love you Ryker, and honor you this day.


20 comments:

  1. Isn't it so comforting to know that you and Mike will raise these two angel babies Emily, that you guys are a Forever Family.

    This was hard to read, but you are so right, it needs to be documented. There are so many emotions that are displayed, but most of all I love the adoration that you both show to your babies. You can tell just how much you love these precious spirits.

    I am so sorry that it's such a hard time for you guys, I can't even imagine going through what you are. Please know we are thinking of you and that we love you guys okay!

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  2. Thank you for your post on my wife's blog. It is comforting to be supported by others through blogging. I don't know what to tell you on Ryker's angel day. The big man has a plan for all of us, but times are still hard. We are thinking of you.

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  3. Tears are pouring down my cheeks. I remember reading Ryker's carepage from the beginning and I read the news while at work. I had to take a break because I was so sad.

    I can't imagine the heartache you feel. It's wonderful to know that you will be a forever family and hold those precious angels in your arms for eternity, but it still doesn't take away the pain NOW.

    Our prayers are with you this week!!

    Andrea

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  4. We love you guys! We are thinking of you and sweet Ryker today. You will be in our prayers. We hope you feel some peace, even though this is so hard and so crappy! Thanks for sharing those sweet pictures. I love them.
    Love,
    Ben and Teea

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  5. What an amazing little boy. I know that he will be in our hearts forever. Know that we think of you today, and we hope that you feel your little family very close. I also hope that you have a little "Heavenly peace".....

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  6. Mike and Emily,
    I am thinking of you especially today knowing it's Ryker's 1st year Angel Anniversary. There is nothing I can say that is good about it because it really sucks! I so wish you had him here in your arms to love instead of loving him from afar. Of course I know you both are giants in the prospective of having "Faith" but I also know you are human and no matter it hurts. I hope that Ryker will some how let you know of his love for you today.
    Thanks for sharing those precious pictures. He will never be forgotten!
    (((HEART HUGS)))

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  7. Thank you for sharing this with us. I cannot imagine how difficult it would be to lose one child, let alone 2. Luckily for you guys, eternity is a long long time and even though it will be a while before you hold your little ones again, YOU WILL BE WITH THEM AGAIN!!

    You are a beautiful couple. Thank you for letting us join in in celebrating the life or your little Ryker!

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  8. Ryker, although we haven't met in this life, I feel a deep love for you and your sweet sister. Your parents are amazing. They have been a source of strength. Your mommy and daddy are truly the greatest examples I have ever known. I wish you were here with them. I wish they could hold you and love you and whisper in your ear how much they love you. You are truly blessed to have them as your parents for eternity, and they are so blessed to have you and your beautiful sister for eternity.
    Love,
    The Haws'

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  9. You have been in my thoughts all weekend. Thank you for posting this even though it was hard. The pictures are beautiful.

    I hope you feel Ryker's arms around you today.

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  10. Dearest Ryker,
    How we miss you Ryker. What a beautiful spirit you have. We are so grateful that we were able to be neighbors in the PICU with you. I remeber when the door between our rooms was open (as it was most of the time) Kaidence would lay in her bed and look at you as you layed in yours. She loved to watch your family coming and going to see you. I remeber your cute stuffed pony. You have wonderful parents as you already know and I hope and pray that they will have the opportunity to feel of not only our Heavenly Father's spirit but yours as well. Looking at those pictures of you make me cry because I remeber that day all too well. I felt so helpless as I sat next door knowing what was happening and feeling so helpless. I had a constant prayer in my heart that day for you and your family. My heart broke for your family but at the same time I could feel the love that our Heavenly Father has for you. The spirit was so strong as you returned to your Heavenly Father. I will continue to pray for your family, most of all your mommy and daddy. I wish I could make things better for them. I would do anything to make them happy. Thank you Ryker for touching our lives and thank you for being one of Kaidence's Angels and watching over her. We miss you!

    With Hope, Faith and Love,
    Shauntelle and Kaidence

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  11. I love you both so much! Wow...it doesn't seem like a year ago at all.

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  12. I can hardly see the keys through my tears. Your babies really are angels, how amazing it must have been to hold them and look into their eyes. How amazing you and Mike must be to have been sent your precious babies. I'm sorry for your heartache and wish there was something I could do to ease your pain. We are SO lucky to have the knowledge of forever becuase that's not long enough!

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  13. Dear Ryker and Lilly's mommy and daddy,
    I am a nurse at Primary Childrens, and I linked to your blog through one of your heart friends. I have cared for patients with both the diagnoses your children were born with, and sometimes I enjoy reading about the personal (rather than just the medical) side of things. It is so easy to get wrapped up in the tasks that fill my job, and forget about the emotions. Your post about Ryker's angel day was beautiful, and I hope that you will find peace, and a new little love to hold in this life.
    Sincerely,
    Tiffany

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  14. We have been thinking and praying for your family during this very special and very difficult day. I can't imgaine the countless emotions you are feeling. I pray that it was a day filled with the Lord's tender mercies and love. Ryker's life is truly one of strength, love and hope to all of eternal families. We love you.

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  15. You do not know me
    I am in Kaidences ward, I have some what followed your story through her blog. I think you are an amazing couple. So strong and careing. I wish you the best of luck in your addoption, You seam to have alot of love to share. I do think it might be alot more comforting to know that familys are forever. Best wishes for this Christmas season.
    Jill Kinder

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  16. Thanks for sharing your sweet pictures and memories with us.
    You made me cry.
    I wish you the best, you are an amazing and special couple.
    Un abrazo.
    ¡Hasta pronto!
    Silvia.

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  17. I came here from a friend's blog...and wasn't going to comment, but then I saw that maybe you'd prefer it on your sidebar.

    There's so little to even say. This post was unbelivably beautiful, including the pictures.

    God bless Ryker.

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  18. I love to read your blog! You are an angel yourself Heavenly Father must have thought you were very strong and very loving, to have gone through what you have gone through is so hard I cannot even imagine. My heart hurts for yours. I am amazed at the strength that you carry with you. Please keep your faith up high I know something good will come to you it just has to. I am so sorry for your pain. I can only imagine the day that you meet your Father in Heaven and he will be so proud of you for what you have accomplished in your life and the lives that you blessed by your faith. Your little angels will be waiting for you and you will never be more happy. You have a truly wonderful day to look forward to. Thank you for all you share with so many people. I have grown from you.

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  19. Thank you for sharing those wonderful pictures Emily. I know it is so difficult and just plain crappy, but you have been such an inspiration to me of faith, strength and love. It is okay to cray and mourn all that you need and know that you have friends who love you and pray for you. I think of you every day and I know that your little angels are so close to you. I pray that your week will get a little easier and that the pain will subside a little.

    It's not Hawaii, but Mesa, AZ is plenty warm enough and we would LOVE to have visitors, we just don't get enough of them :)

    Merry Christmas! Keisa

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  20. Your courage and strength through sadness is an inspiration. I have a LO who is struggling and our road has been rocky. I sometimes have wondered why this has happened to her. I love her and seeing her hurt breaks my heart. But as I read your post I am reminded to count my blessings, to pray and to take life one day at a time. Thank you.
    May the Lord continue to bless you and your forever family with peace and love.

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