
Six months ago today, at about this very moment, Mike and I were standing together, in Ryker's room, hearing the teeny-hoarse cry that comes from a tiny angel that has been intubated for the prior seven weeks. We cried tears of joy, knowing that Ryker was that much closer to coming home. We sat there and just watched him for about 20-30 minutes, just so grateful and peaceful. We left to go get some lunch, hurried and ate, and the came back up about 15-20 minutes later. I remember clearly standing in another heart baby's room, and a nurse telling us that they are about to re-intubate Ryker. We went in his room, and sadly they were. It was quite the let-down, and we we were assured over and over that this is common and happens a lot. Something did not seem right with me. Call it Mother's intuition, but I truly could sense something was not right. We were standing outside his room, looking through the window and staring at the monitor. I remember seeing it drop bit by bit, till I saw the number "49". I decided to go ahead then and call the Grandparents. I advised them to hurry up to PCMC, that something did not seem right. I continued to watch the numbers drop, and then it seemed that all at once the world was slipping away from me. I called the Grandparents again, this time on a cell phone (they usually do not allow cell phones on the PICU). I hastened them to hurry. It was truly then that I felt and knew that the outcome would not be what we had hoped for Ryker. I sobbed, and cried out in pain, because the thought of losing my precious baby once more was more then I could physically bear. Another Mom came and embraced me, and gave me some soft tissues. Mike and I clung to one-another. The nurse came and told us that they were not sure what was going on. They had a couple of nurses, cardiologists, attendings, fellows, and they had just called in the cardio thoracic, Dr. Hawkins. They had brought the blue crash cart, and I yelped out. They said they were just trying to ward off the demons, that they hopefully would not have to use it. Our parents got there, and we just watched everyone working on him. They asked if we wanted a private room, and we told them no, that we just wanted to stay close. They worked on him, scanned him, did everything they could to figure out what was wrong. His O2 sats were 19 then , and had been for some time. They brought the ECMO machine (heart by-pass) and Dr. Hawkins came out to talk to us. He said that they would need to put him on ECMO for him to live, but he was no sure if he would make it to be put on. Mike and I looked at each, and it was the overwhelming sense of someone speaking both to our minds that it was time to say goodbye to Ryker. We told Dr. Hawkins that we would like to bless and name him, and after we would like to stop everything they were doing so that we could just hold him in our arms till he passed. Mike, his Dad, my Dad, and my to-be brother-in-law Cody, laid their hands on Ryker, giving him and name and blessing. Mike spoke of his valiant, strong spirit, and then released home to the arms of his sister and family that were waiting on the other side for him. One of the doctors stood there, pushing the Epinephrine, while I took off all the lines and such and wrapped him in a blanket. They continued to push air into his lungs, and then once he was in Mike's and my arms, they stopped. He slipped away peacefully, surrounded by those who had loved him most on this earth. We let everyone hold him. For everyone besides Mike and I and my Mom, this was the first and last time they would hold Ryker. We just held him, and held him, till the time came to say good-bye. About 20 minutes after Ryker passed, I felt the presence of a young man come into the room and stand close to me. It was a peaceful feeling, and I at once recognized the spirit of the son I was holding in my arms. Six months now, there is still the wound. It never completely heals, although it does shrink in size with time. Once in awhile, the Band aid comes off, and it hurts, but it is not long till it put back on to continue with the healing. Ryker-we love and miss you today, and know that we look forward to reunion we will one day have. I hope that every one of the Dads, specially those of angels themselves, have wonderful Father's Day.
Mike,
ReplyDeleteHappy Father's Day to you. You and your wife are amazing people. We pray for you and your little angels. We miss Ryker and are grateful to have known him. My heart broke all over again for you as I read Emily's post. I felt so helpless as I watched your world crash down on you that day. What a devastating day it was, but the spirit that was there let all know that Ryker IS ok. We love you and pray that you may feel not only Father In Heavens arms embrace but the arms of your two little ones as well.
With Hope, Faith and Love,
Shauntelle
Kaidence's Mommy
Beautifully told. Thank you so much for sharing. I have yet to put into writing the moments just before losing our first son. It's something I really need to do. I keep saying it, but I have yet to do it.
ReplyDeleteThat was such a heart breaking but very moving post. I'm bawling like a baby and so sad that you have had to go thru so much pain.
ReplyDeleteI hope you feel Ryker close by today... He is an amazing little boy...We are thinking of you on what I can only imagine is a very hard and emotional day... Thank you for letting us remember this sweet little one...And let me know what I can do to help with the project... I am all over that business....
ReplyDeleteThank you for sharing about Ryker's last few earthly moments. I cried as I read it. I hope you have felt him with you often. You two are amazing! Thank you for sharing your faith that helps strengthen the rest of us.
ReplyDeletehugs & prayers,
Christina
I don't know you, but occationaly read your post. I am so sorry that you have had so much tragedy in you lives. I pray for the both of you that some day you will be parents not to just angels but to a baby here on this earth. I know you both will be awesome parents. Our family wishes all the best. Thank you for sharing yor story and testimonies with us.
ReplyDeleteEmily,
ReplyDeleteI am just sitting here bawling. I will never understand the amazing strenght you have. As was said at Rykers funeral, you and Mike are one in a million. I know you will be so blessed for all you have been through, and all you have given to those around you. If only we could see the end from the beginning.
Thank you, Emily, for sharing those precious moments. We relive them almost daily, don't we? What a beautiful story to share. You are in my prayers, dear kindred spirit.
ReplyDeleteI have tears running down my cheeks as I read your entry. You are a beautiful couple and your strengh is inspiring. The stories of Lily and Ryker's short lives are so precious! They are such beautiful little angels and were blessed to have you both for their parents!
ReplyDeleteAndrea
Emily, tears are streaming down my face as I read this AMAZING post. I have the chills as I read that you felt a young mans presence in the room as Ryker passed away. I know that your little boy watches over you and Mike and that he is so thankful to have you as his loving parents. You both are the strongest spirits to be able to have 2 angels sent to you and to be the proud parents of PERFECT little babies. Oh Emily, I love you guys and appreciate your words. I missed seeing you on Sunday and was hoping to give you a little hug. Hang in there ok!!!
ReplyDeleteFor someone that I dont even know you have touched my spirit in so many ways. Your post was precious and brought me to a sobbing cry. How grateful you must be to be so strong and close to feel his prescence with you as Ryker passed, and all along he was probably saying,"thanks mom and dad for giving me a body and spirit, and thank you for letting me go and be with my sister and heavenly father. My mission here on earth is done and I was such a valiant servant,teacher, spririt and son.
ReplyDeleteThank you for sharing your stories, thoughts and feelings. You truly have a beautiful spirita.
jamee colquitt
What an absolutely beautiful story. I could feel the spirit so very strong when I was reading and I know that Ryker is one of Heavenly Father's most noble spirits. You are both very amazing people and I take great strength from your examples of faith and courage. Thank you for being so kind and thoughtful to our family as we embark on our heart baby journey.
ReplyDeleteLove from one heart family to another!
Keisa
I have been wanting to comment on something on this post, today is the day.
ReplyDeleteI have told very close and dear family and friends about how strong you two are and how close to the Lord you have become with all of your trials. It has helped bring me strenth that I have let fade back into view.
I am so touched by the lives you live! You could have let all the things that have tested you overcome you but you have been so strong! I truly believe that what you said and felt that day are so true. I know your sweet little angels are watching over you and helping you stay on the right path to be with them together as a perfect family.
What a blessing it is that you were so intune and felt your son and knew all was well!
We love you
Melynda and family
I am impressed, over and over again, by the spirit you have. You ae such a great example of faith and strength. I think of you two often and I am all the stronger. Thank you for sharing your deepest thoughts and feelings. I am truly touched.
ReplyDeleteYour friend,
Ashley Haws - IHH
I was browsing blogs and found yours. I am amazed, awed and humbled by your wonderful attributes of loving, adoring parents. My nephew, Noah, is a heart transplant baby, my nephew Kayden ( Http://transplantmommy.blogspot.com) is a kidney transplant baby, my son is a 25 week preemie who now lives with physical disabilites, yet your way of putting into perspective the things that have to happen in order to fulfill the plan is awesome.
ReplyDeleteThank you for sharing your story. I am so grateful for the glimpse into your life. I will check back often.
Nancy Brown
Proud mom to Tyler