The "H" Word

We are nervous to even say the word, but there is talk of our being able to go home this weekend. So we were moved to the infant surgical floor yesterday, which means I get to be a full time Mommy to Jacob *smile*. He is doing really quite well, although since moving to a higher altitude, (from the 2nd floor to the third floor) he has needed just a little whiff of oxygen. We are hoping that once we get to go home, to a lower altitude, that we will be able to discontinue the oxygen. He also has a feeding tube (an NG tube.) We feed him what he will take, which is anywhere from 20-30 ml typically and than feed him the rest through the NG tube. I actually learned tonight how to put one in. It scared me spitless, but was actually not bad. I am thinking we may be home by tomorrow. I am not 100% confident in this, but I have a feeling it will happen. The hydrops/congenital chylothorax has so far been a non-issue. And Jacob was able to get his chest tube out today, along with his PICC line. So in the last three days he has had his ventilator out, his IJ line, an arterial line, an IV, a chest tube, and PICC line all removed, and now gets to work on moving off the oxygen and feeding tube. He will come home with the NG tube (hence the reason I was taught how.) We also passed off giving his meds along with Jacob passing his car seat trial. He is our little miracle.

This last Wednesday was Ryker's third birthday. I feel bad because we did not get a chance to celebrate Lilly's or Ryker's birthdays, so once we get home, we will have to do something special in their honor. We miss Ryker, although I do not think there has been a day that has gone by that he has not been on our minds, especially being somewhere that our only memories of Ryker linger. I know he and Lilly have watched carefully over their family, especially Jacob. We love you Ryker and miss you.

I will try to be better about posting, but things are busy and about to get busier. Thank-you for the prayers. They are very much needed, appreciated, and just a wonderful support. I would also like to ask for prayers for my little brother's wife, my sweet sister-in-law Lindsey. She found out this week she has thyroid cancer, and I know they could really use the added prayers.