November

November started as a pretty good month. Collin learned to take selfies (shudder) and all in all, everyone was happy and healthy.

But at Jacob's 3 year well check, it was discovered that his tonsils were 3 times too large. So off to the ENT, where it was decided he would need surgery. The next week (Veteran's Day to be exact) we headed to the hospital. Jacob was completely happy, just chilling, waving to everyone and telling them "hi". They came to get him, he gave me a kiss, said "bye mom, bye mom" and walked hand in hand with the nurse to the operating room. A short 30 minutes later, he was out, really dozed and tired. The OR nurse told us she has never seen a kid like Jacob before. She said he was not scared, even once getting into the OR, just climbed up on the table, and was chatting and smiling. She said then when he was woken after the surgery, he did not cry, just smiled and dozed back off to sleep, letting them carry him out to me. I sat and hold him, rocking and waiting for him to wake up. 

He was pretty sleepy once we got home, but ate and drank fine, took his medicine, and we thought we were in the clear. But then croup happened. By Friday, he had not hardly drunk or eaten anything, would not take his medicine, and was becoming dehydrated. I called that afternoon to the ENT, and they told me to take him to the ER. That experience was one of the worst in my life, as a mom, and broke my heart for my little guy. They could not get IV access, they gave him a medicine to doze him so they could do an intraosseous IV, he had a horrible reaction to the medicine, and the IO had to be re-done. They were finally able to get fluids, so we got to go home. Two and a half days later, Jacob was again dehydrated and in so much pain. 

I took him into our beloved pediatrician, who saw Jacob, and realized he was going to need to be taken in, but we decided that instead of taking him to the hospital we had the first time, that we would go 45 minutes up to the children's hospital. They were amazing (as usual) and had the IV team come, who got access in their first attempt. Jacob was pretty acidotic, so he was going to have to stay at least overnight and get some fluids, and so that they could give him morphine and try to get the pain under control. It was really hard, as he was stuck in his room (the parainfluenza that caused the croup is contagious) but thankfully we had one of the Grandpas stop by and an aunt. That evening, I asked if we could be discharged, as he was once again hydrated, and I felt we were in a better place to stay on top of everything.

Jacob lost about three pounds of his whole thirty-five pounds, and has since only regained one of that back. And it took him a few weeks to get back to our happy and smiley boy. I think Thanksgiving was the first time he really ate well (and who could blame him?)

The best part of November was Cora coming off of all of her tubes (whoo-hoo!) and enjoying the life of not being tied down.

This teeny tiny has come a long way since, but again, that is all for another post. :)

Whoa.....October???

I am so very sorry that I seemed to have fallen off the face of the earth. Let's play catch-up and then go from there.

October:

Little Miss Cora was still on the oxygen and the feeding tube, which was rough for sleeping, but you couldn't ask for a cuter reason to be awake.

The boys fell even more in love with their cute little sister, fighting over who gets to hold her.

I thought Collin was getting sick, as one Sunday he took three two hour naps, until Mike came home and found the hidden (and empty) Benadryl. After calling poison control and finding out he was all right, we had to laugh. He said his reason for drinking it was "it tastes like candy juice". Well, I guess we will just have to keep that "candy-juice" under lock and key in the future.

Can I just get an 'amen", that there is nothing cuter then baby bums poking up? Yeah, I love those cute little bums and love to squish them.

Jacob turning 3 and being sick.

The blessing of having a birthday the first part of October is having the beautiful weather still, and choosing to celebrate by heading to the Pumpkin Patch. It makes my heart so very happy.

I even got brave and took my 3 kids, on Halloween, to the massively crowded Gardiner's Village, where there were a gazillion people, most of which were tired littles and tired moms. What was I smoking in thinking that was a grand idea? Live and learn, live and learn.

This was Collin's face painting experience, which promptly after this picture, he requested that "the itchy paint be washed off". Bless you baby wipes!

My boys love to play with the iPad, and love even more to take pictures. I love these next two, because it shows you, with just one eye, how sparkly and beautiful Jacob's eyes really are. That little boy is blessed to have such gorgeous eyes.

Cora stayed on her gear until the end of October, but came off the oxygen in the first week of November. We were still working on the feeding tube, but it too was about to come off.

This picture above actually happened in September, but is is just too cute to not share, especially as Collin thinks quite highly of this crime fighter, as evidenced in the selection of his Halloween costume, pictured below. And who could resist a darling picture of our little heart-hero Gracie!

All of the Utah grand babies and my parents.

Collin and cousin Khloe.

An awesome super-fun night with the Vallen girls and Kmetsch sisters.

And the traditional BYU homecoming parade, where every living Grand-baby is pictured with the Grandparents. We love parades around these parts, and love that our family is all together now.

I think that about wraps it up. November was UGLY (except for Thanksgiving) but that is a whole other post. :) 

Who we are.

Welcome to our blog. We are so pleased you have found your way here and can share in the bits and pieces of our life, both joyous and sad. Let's start at the very beginning (a very good place to start I hear). I am Emily. I am the wife and mom of our crazy bunch, and I hail mostly from West Virgnia, but also claim Ohio and even Florida. Living in what I deem "the Utah bubble" has been quite the adjustment, even now, 12 years later. But what I am grateful is that I came here, because without having come here, I probably would not have met my husband.

Mike is the husband and Dad, and you will not find a kinder soul, or more hardworking one. He is my strength, and I cannot imagine my life without him.

We have 5 littles, but only 3 on this earth. Our first was a little girl, named Lilly, who lived a miraculous 5 weeks, which was 4 weeks, 6 days, and 23 hours longer then we had hoped, as she was born missing much of her brain (a condition called Holoprosecephaly). Her life was nothing short of miraculous and although our hearts grieve as we long to be with her, we know that she is busy on the other side, and watches over us. She would have been 8 this fall 2014.

Ryker is our next, and is also another one of our angels. He was born one year and nine days after Lilly,  with a congenital heart defect called Hypoplastic Left Heart Sydrome. He too taught us much. He was so strong, so sweet, and we miss him dearly. We hold onto our belief and knowledge that we will be with them again someday, as long as we are striving to live our lives to the best that we can.

Collin is our current 5 year old. He is smart, imaginative (almost too imaginative at times) and we were blessed to have him as part of our family through the blessing of adoption. We brought him home at 5 weeks, after fighting in court for him, ultimately losing, but we were able to become his foster parents. He is such a joy in our family and we love the spunky little spirit.

Jacob is our 3 year old, and let me tell you, there is not a happier 3 year old out there. He has eyes that shine, and finds such joy and glee in the everyday. Jacob is another congenital heart defect warrior, actually sharing with his dad the pains of having been born with a coarctation of the aorta. He also fought hydrops in-utero, and after a lifesaving shunt that was placed through me and into his chest, he was able to grow and was born at a mighty 7 lb. 1 oz at just 36 weeks. He started early intervention preschool for some delays (fine motor and speech clarification) but he LOVES riding the bus and seeing his "fwends" which include not only his classmates but also his beloved teachers and school bus drivers. He is kind and we could not imagine life without him.

Cora rounds out our little bunch. She was born early, at just under 33 weeks, but is the healthiest little baby. She just celebrated turning 6 months chronologically, and she is adored by not only her parents, but also by her brothers.

That is us in a basic nutshell, a very basic understanding of our somewhat complex family.

A Remarkable Journey

There are so many moments in this life, where I begin to really question whether I knew what I was doing, in signing up to come to this earthly life. I am so far from perfect,  and I have so very much to work on. When we lost Lilly and Ryker, it made me want (even more) to climb this mountain of life, and be reunited with my beautiful daughter and son, and have the opportunity to raise them someday. For that reason, while I am apprehensive of the death that will come at some point in this life, I also rejoice in knowing I will be hugging Lilly and Ryker the second I pass from this world.

These last nine months have again been some of the hardest of our life. It started with finding out that the birth control I had been faithfully taking had failed, and we were expecting. What followed were months of constant nausea and vomiting, while trying to go to school, work, and most importantly, be a wife and mother. My Grandmother also called and let us know she would be listing the home we were living in at the time. The stress was tremendous, as well as the stress of the unknown with our unborn baby. I tried to do my best to get through, (although I know I probably could have done better) but it was difficult. In July, a few weeks after returning from Mexico, I developed preeclampsia. I have to say, I pray I never have chronic health issues, because the 5-6 weeks I battled with the icky feelings of my body being sick, are weeks I pray to never repeat. The last straw was my liver enzymes sky-rocketing, and the pain and nausea that accompanied.

Through all of this, I was terrified. Terrified of losing my baby to the preeclampsia, nervous of something happening to me, but really just scared of the journey we know as life. With bed rest came the potential of losing my job, a job I love as it is generally such a happy world to work in. We were nervous to be in the process of owning a home, and wondering if our savings would be enough to let us live and make the payments, and again, the fear of being able to provide for our sweet little family. Mike worked unbelievably hard, but school was about to start, and those extra shifts and overtime would be a thing of the past once his classes began. I was beyond worried, and cried every day, even several times a day, as to what could be done to be able to live and survive.

July 30th, Mike was at work, on just a routine Tuesday afternoon. He had just walked back in from a taking a patient out, and was walking down the long hallway. As he neared the one side of the nurse's station, he noted a familiar looking man, walking down the hall, with two other men beside him. He thought to himself "hmm, that looks like President Monson". As he walked closer, he realized it was indeed the beloved Prophet and President of our church, the Church of Jesus Christ of Latter Day Saints. He saw him go into a room to visit. Mike lingered, waiting with some of the other staff for President Monson to emerge. When President Monson came out, he walked around, shaking and greeting the staff and other patients that were in the hallway. He gave a blessing to one of the patients, calling her by name, and there were many smiles and greetings shared around. President Monson was reminded by his daughter and security detail, that they had to get going, and they turned to leave. Just a second later, President Monson stopped, and turned while saying "I do not think I have had the chance to shake everyones hand". He walked over towards Mike, and Mike thought to himself "hmm, maybe he had forgotten that he had already shook my hand". Mike put his hand out, and President Monson smiled, grasped it, and pulled Mike in, placing an arm on his shoulder. He spoke and said: "Michael, may you and your wife receive the strength to endure the coming weeks, and may you find strength in knowing your children, that have gone to be with God, will be with you always, and will strengthen you and lift you up". He patted Mike's shoulder, winked, and turned to leave.

President Monson is the leader of millions in the LDS faith. Although Mike and I have met him once, at a fireside he spoke at (while we were dating) he does not personally know us, know that we have beautiful angel children, watching over us. But do you know who does? A loving Heavenly Father. He knows us. He loves us, and wants us to make the choices necessary to return to live with him.  This was not a story we were going to openly share, but we feel it is one necessary to share, something that will maybe help strengthen another, as it has us. May you each be buoyed up in knowing that while this life can and will be tremendously difficult, everything will be okay, if we can hope and rely on the goodness of a loving Father in Heaven.

A Sweet Little Miss.

You all will have to forgive me. The last two months have been BEYOND crazy. I was put on modified bed rest the 20th of July, due to high blood pressures and protein in my urine. The week before that, I was out in the hospital for horrid symptoms, and threatened with a 28 week delivery. Thankfully the levels came down, and they began watching closely all that was going on. I started going weekly to the OB, and started to also do weekly labs. My pressures were kind of all over the place, as were my protein levels. We knew we were going to be moving, as my Grandma was going to be selling her home, so we ended up being tremendously blessed in being able to find a home of our very own, and closed August 15th. The next day, I had repeat labs, and discovered that my liver enzymes were going high. This was not good. My OB was really concerned, and gave me just a week before they would be taking out sweet girl. We moved the next day, and I did not do the heavy lifting, as our wonderful neighbors, friends, and families pitched in to help. I started feeling really sick on Sunday, and on Monday, I was experiencing a lot of pain in the area around my liver, and also I could not eat or drink much, as I just felt sick. I called my OB's office, and found out my regular OB was out sick, so I saw a partner. He sent me over to L&D, where it was discovered my liver enzymes were still climbing. The OB weighed in with my wonderful perinatologist, and the OB at the hospital I would be delivering at, and they all decided, that at 33.4 weeks, our sweet girl would be coming in the next few hours. We declined the ambulance ride, and Mike drove me to the other hospital, where we hung out a few hours until the OBs were out of the emergency surgery, and were ready to bring our sweet girl into this world. I was so nervous, but after a beautiful experience, I felt immense peace too.

In the car: one last belly shot.

At 12:32 am, weighing a teeny-tiny 4 lbs. 3 oz, and measuring a petite 16 inches, little Miss Cora Anne came into the world crying (a wet cry) and ready to fight. They placed her on CPAP, but ended up having to place her on the oscillator for her first 12 hours of life. 

She was able to come off and just straight onto room air, and did AWESOME!!!

She looks like a member of my side in this picture.

One happy Dad here. 

After her first bath.

Cora is just beyond sweet. She has a gorgeous head of hair, smells divine (I love the sweet scent of a brand new baby, straight from heaven!) and has everyone just smitten with her. She is two weeks old today, and will be in the hospital until she learns to eat. We are hoping that takes off in the next week, and we can make that happen. I hate every time I have to leave her, and all of us are just excited for her to come home. 

We just took Jacob and Collin to meet her for the first time on Sunday, and they absolutely loved their tiny new little sister. It was so cute to see their reaction. 

I know this will be a small moment, but we are asking for prayers that she can find the energy and interest to be able to eat. When she can do that, she can come home. I will try to update more regularly, as it is important to document these moments, as they grow up so quickly.